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Miracle toddler defies the odds

MARYKE PENMAN
Last updated 09:57 06/09/2012
toddler
GLOW KID: Hillcrest toddler Mylee Platt, 1, has a rare neurological condition but has come a long way with intensive therapy.

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The parents of Mylee Platt have been told they have a miracle child on their hands.

At 1 year and 7 months old, the Hillcrest youngster has defied the odds to live this long without entering a complete vegetative state.

Just after birth Mylee was diagnosed with early myoclonic encephalopathy - a syndrome like epilepsy thought to be caused by an underlying biochemical disorder.

Mum Jasmine Platt says the best way to describe it is as though Mylee's brain is an electrical storm.

"She always seemed a bit sleepy but nothing seemed wrong," Mrs Platt says.

"Then she started having seizures so we raced her into Starship. There she had over 50 seizures as neurologists tried to figure out what was going on."

The initial diagnosis came as a rude shock, Mrs Platt says.

"The prognosis is either vegetation or death by age 1 or 2.

"When you expect to have a normal child it comes as a real wake up call. It's the kind of thing that happens to other people, but not you."

Desperate for extra help, Mrs Platt says they called on a spiritual healer, a chiropractor and a numerologist.

"The numerologist told us her original name, Kendall, was associated with brain conditions and said if we changed it to Mylee that she'd be fine by April," Mrs Platt says.

With added help from a spiritual healer, Mrs Platt says Mylee's seizures stopped almost immediately.

Surprise MRI results show Mylee has no brain damage and as a result doctors have left a question mark over her condition.

Mrs Platt says conductive education is causing the most improvement in Mylee since she began in April.

Run by Sandringham based IRIS Health, in partnership with parental trust GlowKids, conductive education is open to children with motor conditions of a neurological origin.

It involves repetitive muscle movement, song, and brain activation.

Mylee spends 10 hours a week at IRIS and has come a long way, Mrs Platt says.

"You realise how much you take for granted when you see these little kids working out," she says.

Mylee has now learnt to sit up straight, is learning to walk, can play with her hands and make verbal sounds.

"It's an interesting journey being the parent of a disabled child. Seeing normality every day in the community is quite confronting.

"GlowKids for us is hope, it's our only chance for her to be normal."

Go to iris-health.org.nz/ iris-conductive-education.html for more information.

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- North Shore Times

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