Pneumonia, tonsillitis and still she waits

Last updated 00:31 04/10/2008
ANDREW GORRIE/The Dominion Post
LITTLE BATTLER: Hayley Knowles' tonsils and adenoids are so swollen they almost touch the back of her throat and obstruct her breathing as she sleeps.

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Lisa Knowles lies awake at night listening to her toddler trying to breathe and prays the next pause won't be her last.

Hayley's tonsils and adenoids are so swollen they almost touch the back of her throat and obstruct her breathing as she sleeps.

But despite chronic infections, at least six bouts of pneumonia and half a dozen hospital admissions, the Paraparaumu three-year-old is still waiting for a specialist appointment to get the go-ahead for an operation to remove her tonsils and adenoids.

Hayley's weight, meanwhile, has fallen from 21 kilograms to 17kg because she finds it hard to eat. Her speech is also affected.

"She has sleep apnoea because her tonsils are so swollen but I don't think she would be seen as `urgent' unless her breathing was actually completely blocked off," her mother said.

Two weeks ago, Hayley became so sick her mother took her to Kenepuru Hospital in Porirua. "She had a high temperature and was really lethargic. It was obvious to me she was getting pneumonia again."

The doctor who viewed her chest X-rays said her lungs were clear. "He told me, `Take her home - it's just tonsillitis."'

Not satisfied, Ms Knowles bundled her "semi-conscious" daughter into her car and drove her to Wellington, where another doctor took one look at the X-rays and diagnosed pneumonia in both lungs.

She spent five days in hospital.

Her mother has received a letter from Wellington Hospital confirming Hayley is on the waiting list for a specialist assessment within six months. She is due for her next hospital appointment next week.

"But she will then have to go on another waiting list for the operation."

Potential complications from tonsillitis include pneumonia, sinusitis, ear infections and abscesses, and the bug can even damage the heart valves (rheumatic fever) and kidneys and cause scarlet fever.

Capital and Coast Health Board chief medical officer Geoff Robinson said staff at Kenepuru acted appropriately, and when Hayley was there she appeared to be "systemically well" apart from her ongoing tonsillitis.

When she arrived at Wellington Hospital, Hayley was alert and looking around, but she did have a temperature. Pneumonia was diagnosed and she was admitted.

A spokesman said the health board would fully investigate the case through its complaints process if the family wished.

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- © Fairfax NZ News

10 comments
Donna   #10   05:26 pm Jan 28 2009

Im disgusted by what i have read. Why should this little darling have to wait and suffer because our health system is so screwed up? She is this countries future, yet the health system couldnt care less about her. What a great mother for getting a second opinion on the wrong diagnosis from Kenepuru. God only knows what would have happened had she just taken the advice of the first doctor and taken her home. The mother should be applauded for this.

erina loo   #9   05:26 pm Jan 28 2009

re sick child..

Why don't mothers give their children cod liver oil any more..?? If you give a toddler one caplet of cod liver oil with their breakfast on a daily basis , you never need to go near a doctor again for infections. It is a much cheaper and healthier way of living.

Tonsils   #8   05:26 pm Jan 28 2009

My child aged 3 is booked in for the same operation (which takes 35 minutes) and fortunately I have been able to choose a time that suits as i have medical insurance that will cover this cost (approx $3,000) I suggest if you can find $120.00 that you ask your doctor to refer you to a specialist and pay the fee and then go on the public list - they can often push you further up the list as she is obviously seriously urgent. I know this is not fair on all the others waiting for an appointment but sometimes it is the only way as by the time she is seen by a specialist under the health system it will be at least 6 months for an appointment and then another 12 for the operation (thats if they don't cancel it at the last minute) Good Luck

Ro   #7   05:26 pm Jan 28 2009

This is desgusting!

I was admitted to hospital with Tonsillitis 3 times in 2006, each time i couldnt breath and lost weight and yet it only took me 6 weeks to have the operation to have them out! This is a innocent little girl, surely they could get there acts together and see that this little girl is in seriuos need of that operation!

Wellington Hospital are great, they are the ones who admitted me after being sent there from Hutt Hospital!

I hope you get your operation real soon! Good Luck and ake care :)

Jo   #6   05:26 pm Jan 28 2009

Poor little girl. Lets start up a fund to get this obviously urgent operation funded privately... Bacterial infections especially strep throat can also cause bacterial meingitisis.. THis operation is URGENT. Can anyone help this poor little girl?

Lisa Knowles   #5   05:26 pm Jan 28 2009

As the Mother of this child I am glad to have some agreement on this issue. As for Kenepuru? You tell me. They claim that Hayley was "systemically well" on arrival. However the xray taken there was the same one viewed by Wellington Hospial staff ( Noted as bilateral pneumonia which had become worse than on a xray for her previous admission a month prior). He stated she has tonsilitis taking a swab to be sent for analysis.I have a copy of the results which states only normal flora was present. So what next. Should I have left my "systematically well" child at home to become more ill and just given her pamol as suggested? As her mother I obviously have become pushy but I think I have to be otherwise who else will push for the treatement she deserves. I myself went to the hospital for a booked apointement last Thursday only to be told that someone had had the test under my name the day prior in the Emergency Departement, therefore the test was cancelled. I myself had not had the test taken so what on earth is going on. I was told it is problem with the computer system. That is an understatement!!!

jenese   #4   05:26 pm Jan 28 2009

Let the politicians talk all they want - what this little girl is going through is what life is about - shame on NZzzzzz - a tiny nation of only 4 point something million and a young child a 3 yr old no less has to suffer like this - shame on all you politicians - that have allowed a essential service to become so over bloated and run down that everyone sufferers for it - this is the true measure of how healthy a society is not the bloody GDP which only shows us where our priorities are so skewed

anne   #3   05:26 pm Jan 28 2009

This is disgusting,while the present government is going around the country bleeting on about how well nz is doing with their leadership,and you hear or read of problems like this, it beggers belief that they actually believe their lies.I agree with the comment above also that the doctor that sent the child home, should be investigated and censured for gross negligence, no question. There are more instances of women going to doctors and getting fobbed off,this trend is worrying and will lead to deaths.This poor little girl suffering 24/7 and having to wait,I'm trying to understand and i am a complete stranger.If national is our next government i hope they can unravel this mess of the health sector,get rid of the leeches,and start from scratch, get rid also of the ill functioning health boards,which are bleeding the health budget,a total cleanout is needed and then we wouldnt get children or anyone having to suffer for urgent treatment.

Teresa   #2   05:26 pm Jan 28 2009

Why is this child not a priority to be seen by an ear nose and throat specialist? I am fed up with the false economy in the health system as at least six hospital admissions have been required for related complications. This young child is on the verge of being abused due to being left to cope with a condition which a simple operation can fix.

I am sick of drink related injuries and sports related injuries taking health dollars away from children who do not deserve to be ignored as this child has been.

L Fleming   #1   05:26 pm Jan 28 2009

What an appalling state of affairs! All the money "thrown" at improving medical care seems to be to no avail. At some stage someone is going to decide that in fact charity does begin at home and before allowing more immigration, that facilities should be in place to accommodate the increased population. By the time this little girl has had all the specialist visits pre-op, it would have been cheaper to have treated her properly in the first place. What about the misdiagnosis at Kenepuru? Is the doctor going to be investigated? I think not. Let's hope National can do better...

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