Erica seeks syndrome soulmate
Erica Perry is on the hunt for someone to make her feel complete.
"I feel like I belong in the world but not as a whole. Because there is only my brother and me. I just want to know if there is anyone out there like us," the 29-year-old New Plymouth woman said.
Perry was born with Miller Syndrome, an extremely rare genetic condition that mainly effects the development of the face and limbs. Less than one in one million newborns have the syndrome, which has seen Perry undergo at least 40 reconstructive surgeries to reshape the deformities it caused to her face.
In a bid to find others like her, Perry contacted the producers of the Attitude TV, which covers stories about people living with disabilities.
"If I could just travel for a day and see someone else with it that would awesome. If I can't do that it would be great just knowing someone else is out there like me," she said.
The resulting programme featuring Perry screens at 8.30am on TV One this Sunday, though its focus is less on her search for others like her than it is on her outsize personality.
Both an incessant tease and non-stop talker it can be hard to get a word in edgewise. She described herself as a complete natural in front of the cameras.
Far from being anxious about her first on-screen appearance she is relishing her debut and spreading the word far and wide for people to switch on come Sunday or watch the episode later at attitudelive.com.
"I could be at home mulling about it all or I could get out and chase my dreams. Which is what I choose to do," she said.
Taranaki Daily News