Family seeks help for tot

MONICA TISCHLER
Last updated 05:00 13/03/2014
Olive Neale
EXTRA SPECIAL: One-year-old Olive, with mum Kizzie, is one in 500,000 babies born with a giant melanocytic nevus.
Olive Neale
BIRTHMARK: Olive’s 30cm nevus on her back.

Do you know a Kiwi kid fighting the odds?

Share your stories, photos and videos.

Relevant offers

Health

Lives could be saved with access to clot-buster device: expert Marlborough Coastguard launches new rescue marine ambulance 'Bluebridge Rescue' NZ wine industry's 'moral' issue - RSE workers face high rents and overcrowding Guy Williams: Rejoice, I’ve solved the problem of smoking forever! The day I died in the middle of a football game Man missing from Hamilton community home not seen for three days Waikato club rugby player likely to be disciplined after KO punch in scuffle Waikato DHB serves the best hospital food in the country, patients say Life support: Dr David Bowie and his magnificent 'everyday miracles' Calls for change on Government breastfeeding omission from obesity agenda

Olive Neale comes across as any other inquisitive toddler as she plays in her Oratia home.

But the 1-year-old tot has a rare skin condition that makes her "extra special" to mother Kizzie.

Olive's one in 500,000 infants born with giant congenital melanocytic nevus - a 30cm brown birthmark covering almost her entire back and wrapping around her front.

She also has more than 100 smaller spots called satellites covering her head, arms and legs.

The condition affects the melanin in Olive's skin, meaning there's an increased risk of developing melanoma.

It's so rare that when she was born, doctors had never seen it before.

"It was all a bit overwhelming," Kizzie Neale says.

There's limited research available in New Zealand so Kizzie Neale and her husband Eddie are taking Olive and siblings, Jaxon, 8, and Meisha, 6, to the Nevus Support Australia conference next January.

The family has set up an online fundraising page on Givealittle and hope to raise $5000 to help get them overseas.

So far they've raised more than $1000.

Kizzie Neale says it's beneficial talking to others with the condition and wants more information available in New Zealand.

"When Olive was born, we tried to Google her condition and nothing came up.

"That was the scary thing, not knowing anything or not having anyone to turn to."

She plans to form a committee and proper support network in New Zealand where families and those with a giant nevus can assist and encourage each other.

"Not only is it important for us to meet others who walk a similar road but it's invaluable that we acquire information about Olive's health for down the track," Kizzie Neale says.

Although Olive's condition is mainly cosmetic, the Neale's still need to be extra vigilant when she's in the sun.

There's also a risk Olive's brain or spinal cord could be affected. An MRI scan would indicate whether Olive has the potentially life threatening condition but her parents have decided not to find out.

Symptoms include seizures or developmental delays, not a concern with talkative and energetic Olive.

"She is who she is and if something goes wrong we can deal with it at the time," Kizzie Neale says.

Starship children's hospital paediatric dermatologist Diana Purvis says smaller nevus around 2cm are common in babies but giant ones classed at 20cm or more are very rare.

Ad Feedback

"When a baby is in its mother's womb, the melanocytes, or pigment cells, grow as part of the central nervous system and collect in a certain area.

"We dont know why it happens - it's not inherited but occurs in a baby out of the blue," she says.

Visit givealittle.co.nz and search Olive's Chance to donate or oliveandherstory. blogspot.co.nz to follow her journey.

- Western Leader

Special offers
Opinion poll

Should fluoride in water be the responsibility of central government?

Yes

No

Vote Result

Featured Promotions

Sponsored Content