Little Toby - big dilemma

Last updated 14:00 14/03/2014
Toby and Finn Dale

IDENTICAL BUT DIFFERENT: Twins Toby, left, and Finn Dale.

Twins Toby, left, and Finn Dale
PLAY TIME: Toby and Finn Dale.

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Toby Dale is a mini version of his 3-year-old identical twin brother Finn.

His clothing is four times smaller - he wears a three-month-old's pants, he weighs about 6kg less and is 14.5cm shorter.

That's because he has a rare growth disorder known as Russell Silver Syndrome.

Parents Jacquie and Tim have tried to learn more about the syndrome, particularly as one of the main problems for Toby is keeping food down, requiring a high calorie formula to be put through a stomach port three times a day for an hour.

The Dales want to take Toby to meet two foremost Russell Silver Syndrome experts at a Chicago conference in July run by the Major Aspects of Growth in Children Foundation (Magic).

They particularly want to learn more about growth hormone drugs, which here would cost many thousands of dollars annually.

Funds for their trip are being raised at givealittle.co.nz and through a North Shore Multiple Birth Club fundraising pre-loved sale on March 30.

The sale at Meadowood Community House, Unsworth Heights, includes discounted baby and children's clothes, shoes, toys, maternity wear and more.

Entry is via a gold coin donation to help Toby and for the North Shore Multiple Birth Club, a non-profit club dedicated to the support of families of twins, triplets and multiples on the North Shore.

It is run by parent volunteers who offer help, support and advice about dealing with pregnancy, birth, and the first years.

Mrs Dale is a member because they used to live in Browns Bay.

She hopes to be at the sale because she will taking Toby from their Gordonton home to Auckland Starship children's hospital for more treatment.

Visit nsmbc.org.nz or Toby's Big Trip fundraising on givealittle.co.nz for information.

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- North Harbour News

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